Its been a pretty rapid decline from the highs of last week, in fact I cant believe its only a week since we returned.
Since then Ive had a chest infection, which is at last starting to clear up with the help of some heavy duty anti biotics, plus the side effects of Sutent have really kicked it.
These side effects are cumulative, so each month they appear earlier and get worse. My hands and fingers are so sore, having little blisters and sores all over them, especially on the tips of my fingers. Constant application of Udder Cream doesnt seem to help, and nether does constantly having my hands in washing up water Ive found !
I cant eat much. Im getting awful indigestion and reflux from anything other than very very bland food such as milk, yoghurts and rice. I feel bloated and sick all the time and the acid that fills my stomach makes its way down and out and leaves me with a very sore bottom !
Im in week 3 of cycle 3 and the fatigue is getting worse too - a couple of weeks ago I was charging all over Europe (ok - not exactly charging !) and now Im exhausted after hanging the washing out. I know this will get worse and next week I will spend mostly asleep.
Now Im due to have a break from Sutent the week after next but Im going to negotiate with Dr P. to change this. As I was so well on the cruise, and that was week 1 of taking Sutent, I want to take it continuously and have my weeks break starting 11th August. Which means that week 1 will be 18th August. Which is the date we go to Turkey ! I know it will be a rough couple of extra weeks but it will be so worth it if Im as well as I was on the cruise.
I need to feel as well as possible for our holiday in Turkey because we are going on a Gulet (Turkish sailing boat) for a week - all 5 of us. The whole family for the first time in years together. This is something Martin has wanted to do for a while now and hes getting very excited about it !
Inspite ofall the horrid side effects the important question is whether Sutent is working ofcourse.
And yes - I truly believe it is. Even on the tumours under my armpit this time. The pain I was getting there during my weeks break went within 4 days of taking it again and they both have definitely shrunk. Definitely. As has the one on my head.
So all in all this is good news - Im seeing Dr P next week and hopefully he will confirm this, after all he has the last word on the matter !
In the meantime its banana milkshake for breakfast and a bowl of rice for dinner - a bit of a come down after the wonderful food I was eating on the ship - but thats fine, I have all that lovely Turkish food to look forward to soon !