I made the decision yesterday after several truly awful horrible days.
Days spent in bed feeling sick, in pain from my split infected fingers and feet, sleeping on and off due to the extreme fatigue, pain in my armpit and back and generally feeling just DREADFUL.
My body was telling me, in no uncertain terms, it needed a break from Sutent. Ive been taking it for over 4 months and have only had 3 weeks break so far - and at the highest dose of 50mg. I really wanted to keep taking it until next week and was determined to do so but there comes a time when quality of life is more important.
So I stopped taking it yesterday. 7 weeks non stop is enough.
Ofcourse Im running the risk of my tumours starting to grow again during the next couple of weeks. But I think this is the right thing to do - I cant spend the next week in bed getting weaker and more ill.
It wasnt an easy decision, I agonised over it for ages, but Im sure it is the right one. Life, no matter how long or short, is for living, not merely existing.