Yesterday I learnt how very close IL2 had come to seeing me off.
I had an appointment with Dr Ps registrar for routine bloods and a check up after last week. It took all my energy to get dressed and out of the house and I could barely hobble from the car into the hospital. First I had an ultra sound on my right arm because it has blown up like a balloon - and my shoulder and chest. I have a blood clot in my arm pit caused by the PIC line - so now I have Clexane injections and Warfrin to take every day. Brilliant. I think Im single handedly keeping the pharmacutical industry alive with all the drugs Im on at the moment. I was really worried this would affect my flying in a couple of weeks but nobody seemed concerned about it. Apparently its not uncommon for this to happen. So now both my arms are swollen and Im covered in a lovely bright red rash all over - I look like Mr Blobby !
Sarah, the registrar, confirmed I wouldnt be having any more IL2 due to my 'severe' reaction to it during the second week. Its such a terribly toxic substance and I can see why patients have died in the past from this treatment. To be honest my memories are a bit hazy, which is probably a good thing, but Im having some very scary nightmares at the moment which Im sure are in part flash backs. I shall be having a CT scan in Janurary to see if its had an effect. After all, I did manage 11 treatments so there is still a chance the IL2 has done some good after all !
Less than 2 weeks till we go to Brazil and Im panicing slightly I wont feel well enough. I still feel so dreadfully ill. I know its early days and last time it took a good week before I was feeling better so Im just resting as much as I can and trying to eat well. And smothering myself in Doublebass cream to try and stop the itching and peeling. How many layers of skin is a person supposed to have?....because Im sure Ive shed at least 10 by now !