Its been a bad couple of days for Jane. She has been in some serious pain down her right side from shoulder to hip to knee. Proper pain control is vital for her which went all wrong today as she has a cold and nasty sore throat. Just after taking her MST this morning she started coughing, was sick and we weren't sure whether she had lost the benefits of the drug. We aired on the safe side but it soon became apparent that she was down on pain relief. She looked drained and for the first time, ill.
I offered words of encouragement and we worked to get her pain relief levels back up again within the correct time period but I think the damage had been done. She began talking about, "after I'm gone" and "you know what type of funeral I want don't you "
By chance, there was a clip on the news this evening about a Bristol kidney cancer patient who was on a trial with Afinitor and how it has extended his life by 6 months. Some stats came up saying how the drug can extent patients' life by up to 5 months as opposed to 2 without it. Jane is now into her 6 month on the drug not to mention the many months on Sutent before hand. For that we are so very very grateful and thank those responsible, manufacturer to prescriber from the bottom of our hearts, the extra time has been priceless to us.