Its been a bad couple of days for Jane. She has been in some serious pain down her right side from shoulder to hip to knee. Proper pain control is vital for her which went all wrong today as she has a cold and nasty sore throat. Just after taking her MST this morning she started coughing, was sick and we weren't sure whether she had lost the benefits of the drug. We aired on the safe side but it soon became apparent that she was down on pain relief. She looked drained and for the first time, ill.
I offered words of encouragement and we worked to get her pain relief levels back up again within the correct time period but I think the damage had been done. She began talking about, "after I'm gone" and "you know what type of funeral I want don't you "
By chance, there was a clip on the news this evening about a Bristol kidney cancer patient who was on a trial with Afinitor and how it has extended his life by 6 months. Some stats came up saying how the drug can extent patients' life by up to 5 months as opposed to 2 without it. Jane is now into her 6 month on the drug not to mention the many months on Sutent before hand. For that we are so very very grateful and thank those responsible, manufacturer to prescriber from the bottom of our hearts, the extra time has been priceless to us.
Martin
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25 comments:
Jane, take care of yourself (and Martin likewise) and I hope this is just a blip. I haven't been commenting recently, but I have been thinking of you.
Emma
Pain, I gather, can be a very despiriting and demoralising affliction. Losing control of that makes that worse. Whilst recognising that the worst case scenario could become more a reality than in previous times, I do hope that Jane can be given some improvement on her pain control.
Wishing you both strength,
Guido
I saw that news report, interesting and thank god Jane was able to get it. I hope pain can be brought under control this is so distressing as she has fought it every inch of the way and then some.
Best wishes and prayers being sent your way.
Yasmin
xx
am sending up a prayer for both of you, for strength. i also pray that jane can be made comfortable.
God bless you both.
I am so sorry to read that you're in pain Jane, I'm hoping that by now it's been controlled. Best wishes to both of you.
My thoughts are with you both and as Emma has said lets hope it is just a blip,
Andy
Don't know what to say and I'm not often lost for words.
(((((hugs)))))
Jackie. xx
Thinking of you
Andy x
Jane there are prayers coming in from all over the world for you I hope you can feel them. I know you don't visit facebook but believe it when I say they are all rooting for you and sending cyber love and support your way.
Martin you are one very special person and your love for Jane shines through.
xxx
PRAYING THAT JANE HAS A BETTER DAY TODAY ..
ALWAYS THINKING ABOUT YOU GUYS...
Jane you are such an awesome lady,world wide people wait on news of you, so many prayers and loving thoughts,you stay in mine
Hi, came here by way of Call for Support, Jane, you are in my thoughts and prayers. Hoping that pain relief can be found soon.
All the best
Maire
I am just back after a few days away so I am so so sad to be reading that our dear Jane is not so well again. My heart and prayers go out to you all. I hope that perhaps by today things are a bit better.
Thank you so much for keeping us up to date.
God Bless, love Sybil xx
Hey Jane. I am sending Massive Prayers and Big Cosy Cuddles your way. I hope you are at peace with the pain. I thought about you so often when I was In hospital. I just hope they all treat you with the proper care and attention you require. Get plenty of rest so that you can summon up your strength to boss martin! lol. (Sorry martin, You are a star!) I always look for humour and hope. It's my thing! and I always will!. Much Love to you both. Keeping you close as always. Anything I can do, please give me a shout. Love Pam.xx
Sending up prayers for both of you. God bless.
as always jane is in my thoughts martin.no words otherwise.tc.mort
Hi how's it going? Hoping you are having an easier weekend Jane and Martin. Enjoy Valentines together tomorrow. Always in my thoughts...Take care both of you
Jackie xx
Jane, as I've said before and I'll say it again, hang in there! Pain is not very easy to deal with and I know you have been through so much recently, but please keep in mind that your support system most definitely does extend right around the world. We are all indeed rooting for you and praying for a return to better health my friend. You have been such a wonderful support to not only myself but my husband since we first met from across the pond. I only wish there were some way we could return your kindness. You have blazed a great trail for so many other cancer patients and I am indeed proud to know you. Keep the faith my friend....!
Martin, you are one amazing caregiver!
I am so sorry to hear that things have been so tough Martin. You and Jane are never far from my thoughts.
Heli
Think about you often and I am checking your progress. You are such a strong person with wonderful family around you. My mother Pamela alias Betty from Plymouth sends her love.
Sheila
x
my arms are reaching across the pond to give you both warm hugs. you have given so much of yourselves and you are in our hearts forever.
Karen in Ottawa Canada
You are in my prayers Jane and Martin every day.
Love,
Michelle
My thoughts & prayers are with you guys each & every day.
Joanne (Ontario, Canada)
Thinking a lot about both of you and hoping for some better news soon.
Dear Martin and Jane
I come to your Blog late but hope that by now the pain relief has kicked in for you Jane.
YOu will be in my prayers each evening.
God bless you both.
Jeanie
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