After a couple of 'down days' Ive decided its time to get a grip. Ok - so my 'full and durable response' has gone but I still have the hope of Sutent working and delaying the progression of my disease.
I need to get fit - well fitter at least. Having spent the majority of the past 4 months almost bed bound by the side effects of IL2 Im incredibly unfit and SO stiff. I need to build my energy levels back up and be as well as I possibly can be for as long as possible.
So Im going swimming - as soon as I get this Hickman line removed. Just a couple of times a week to increase my suppleness more than anything. And to tone up what muscles I have left !
And Spring is here at last so I shall spend more time in the garden. And I shall walk more - and I dont mean just pottering around Tescos !
Were really lucky here, we have the countryside right on our door step with the most beautiful walks a few minutes away.
So thats my plan - I need to feel as if Im still doing something - still fighting - and I think this is the best way at the moment. It will get me out of the house as well, just in time as I think Im starting to go stir crazy !