Gosh I feel better. Its as if the 'IL2 fog' has lifted at last. Although still feeling a bit tired Im managing to get out and about and do things at last. Im still waiting to have my Hickman line removed but Im on the list at the QE and should be called in the next couple of weeks.
I hope so. Because I did a naughty thing last week and booked a holiday. For just Martin and I. No kids !.....needless to say they are NOT amused ! Were going to Fuerteventura (see pic above) for a week on 30th April. Just the two of us and I really cant wait. We have never had a holiday on our own since the children were born. Even now, when they are 23, 17 and 15 I shall still worry about leaving them. Martin is more worried about them having a party and trashing the house !
Its important Martin and I get some time together - on our own. Things have changed over the past few weeks and although we have acknowledged the fact, we havnt really discussed it. To be honest Ive been doing my 'ostrich act', head in the sand, just carrying on as normal. But yesterday I was told I have been referred to our local Hospice community nurses - and thats really brought it home to me.
Im really hoping we can have this holiday and I can start taking Sutent after. Some people suffer quite nasty side effects with it - some seem to tolerate it really well and Id rather wait till I come back to see how I cope with it !
Im SO lucky to have received funding for Sutent. It seems every week now there is an item on the news about a cancer patient who has been denied one drug or another. And its not just kidney cancer - bowel cancer, lung cancer etc ... so many patients fighting for the drug they need at a time when they should be enjoying life with their families.
I still havnt heard from Mr Levek about having my lumps removed - he had better pull his finger out and get me sorted in the next couple of weeks. It will be bad enough going away with a big bald patch on my head but I really dont want stitches in my face as well ! Ive added them up and I shall have 6 scars on my body then - all I will need is a bolt through my neck and Ill look like Frankenstein !!
I dont care though. Its not important. The important thing is that Im still here, feeling well....and in a few weeks will be packing my bikini !
8 comments:
What a wonderful positive attitude you have ,you deserve your holiday ,and Im sure the kids will agree ,..love Jan xx
Have a wonderful holiday ~ and always keep your positive attitude it will win through for you in the end ~ Ally
A holiday with Martin will do you more good now, than anything else, it also gives you a chance to get your strength up for the new treatment. Keep fighting.
Take care
Yasmin
xx
Its good that you have booked that holiday and that you will have some alone time with Martin to talk about things. I am sure the children will be fine when you go off on your holiday and I bet they are pleased that you are doing it too. You mentioned about the hospice, please don't get too worried, they are they to support and also to counsel you if you need it and are experts in pain control, far better than the doctors at times. My stepdad used to go there for little respites to get things under control and also he used to go there for a day club which he really enjoyed but is not everyone's cup of tea. Hugs, Tells x
Good on you for booking a holiday, Jane, and hope you'll have a whale of a time. I do hope the progression of the disease can be slowed using Sutent. Have a great weekend!
Jane, If you could see through that screen of yours, then you would see my big broad grin! I am absolutely thrilled for you that you are able to get out and about and that you booked a holiday. I can just picture you so happy to be getting a proper break. Now don't go putting a dampner on It worrying about the kids! lol I am sure they will behave. Since I gave up drinking I will raise my cup of earl grey in your general direction instead!! lol. Love Pam xx
Am smiling at the thought of you going on holiday. . . .that will be wonderful for you both.The kids will be glad for you too and they will look after the house for you.I have a friend who has been going to the hospice for seven years,she goes to get her medication right and a little rest too.I am still praying for you.
awww jane bless love. you have a lovely hol spend time with martin laugh and enjoy the sun you take care dont often pray these days, i do for you mort xxx
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