Gosh I feel better. Its as if the 'IL2 fog' has lifted at last. Although still feeling a bit tired Im managing to get out and about and do things at last. Im still waiting to have my Hickman line removed but Im on the list at the QE and should be called in the next couple of weeks.
I hope so. Because I did a naughty thing last week and booked a holiday. For just Martin and I. No kids !.....needless to say they are NOT amused ! Were going to Fuerteventura (see pic above) for a week on 30th April. Just the two of us and I really cant wait. We have never had a holiday on our own since the children were born. Even now, when they are 23, 17 and 15 I shall still worry about leaving them. Martin is more worried about them having a party and trashing the house !
Its important Martin and I get some time together - on our own. Things have changed over the past few weeks and although we have acknowledged the fact, we havnt really discussed it. To be honest Ive been doing my 'ostrich act', head in the sand, just carrying on as normal. But yesterday I was told I have been referred to our local Hospice community nurses - and thats really brought it home to me.
Im really hoping we can have this holiday and I can start taking Sutent after. Some people suffer quite nasty side effects with it - some seem to tolerate it really well and Id rather wait till I come back to see how I cope with it !
Im SO lucky to have received funding for Sutent. It seems every week now there is an item on the news about a cancer patient who has been denied one drug or another. And its not just kidney cancer - bowel cancer, lung cancer etc ... so many patients fighting for the drug they need at a time when they should be enjoying life with their families.
I still havnt heard from Mr Levek about having my lumps removed - he had better pull his finger out and get me sorted in the next couple of weeks. It will be bad enough going away with a big bald patch on my head but I really dont want stitches in my face as well ! Ive added them up and I shall have 6 scars on my body then - all I will need is a bolt through my neck and Ill look like Frankenstein !!
I dont care though. Its not important. The important thing is that Im still here, feeling well....and in a few weeks will be packing my bikini !