Edward and Catherine James
Its almost 17 months since I was diagnosed. I dont usually take a lot of notice of statistics, especially when they are depressing, but this is one time Im happy to say Im beating them - well and truly. I really shouldnt be here.
I try not to dwell on that fact too often, but yesterday I was watching the news of yet another KC patient fighting for funding for Sutent and it was stated that without treatment a patient with mRcc (advanced kidney cancer) has only a few months to live. Ofcourse I knew this, but to have it publically announced was a bit of a shock.
For a while now I have been thinking about making 'Memory Boxes' for the children and Im going to make a start on them this week. Ofcourse being in their teens, and older, they will have well established memories of me anyway, so these will consist of stories of when they were born, when they were babies. Photos and the odd bits and pieces Ive kept over the years - the silly things that we Mums collect, cards and letters for future birthdays/special days, and little gifts.
Ive put off doing this until now because I find it incredibly upsetting just to think about it, but this is such a wonderful opportunity, Im so lucky to have it and I really must make the most of it.
How many parents get the chance to actually sit down and write to their children and tell them how much they love them, to describe the day that they were born and how special they are each in their own way?
At the end of the day memories are all we leave behind but they can help to shape the future and its important they should be positive, happy ones.
So today I shall make a start, knowing full well Ill be crying buckets whilst I do it - but hoping Im creating some smiles for the future.