.......actually there are 4. One by my nose, one on my head ( the horn) and two under my right arm pit. And they are all growing so need dealing with fairly quickly.
In the case of the ones on my face and head that is relatively easy - Dr P has referred me to a comestic surgeon called Mr Levek who will deal with those.
But the other two, the ones under my armpit, arnt so easy. They are quite deep within the tissue so not suitable for an operation.
So the decision I was so worried about making has been made for me really. I need to start taking Sutent. Which means I can wave bye-bye to my 'full and durable response'. IL2, which may have been working on my internal tumours, isnt touching these skin lesions and they are growing at an alarming rate.
Prof H was right then - and thats the end of my IL2 journey of hope. I have to admit part of me is SO relieved not to have any more of that vile treatment but Im not sure the full implications have sunk in yet.
I shall see Mr Levek in the next week or so to get my horn and my nose lump removed. Then have a CT scan in April. Then start Sutent. And pray it works. And buys me some time.....
5 comments:
Thats such a blow as the IL2 was working albeit an horrendous process, at least your getting the lumps removed, and hopefully the Stutent will kick in for the rest.
To honest I've admired the way you've coped thus far, and you have put up such a terrific fight, all you can do is keep going the best you can.
Take care
Yasmin
x
Jane,
I'm sorry that IL2 has not done its job, and there is no point continuing this treatment if it's not achieving its aims. I hope the Sutent does meet expectations. I cannot imagine what this balancing act must feel like for you.
Guido
So very sorry after all you have gone through ,That the IL2 though has worked on the inner growths ,but not the others ,I pray now you get a good result from the Sutent,I pray also for you to have strength to continue your fight,with love Jan xx
I'm sorry to hear you have to give up the one treatment, although if it isn't working, then I guess that's best. I hope the Sutent works. In the meantime I hope that you can get some rest and relax a bit. Please take care!
Lori
Awwww. . sorry that the IL2 hasnt worked though not sorry you dont have to suffer the gruelling ordeal of it. Just concentrate on the sutent instead.Am praying this will do the job for you.Best wishes to you all. . and to your hubby too. . .I know how bloomin helpless I have felt watching my husband cope with so much stuff and hospitals and surgery.God Bless each one of you .
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