Tuesday, 18 November 2008
Whenever I see a picture of me and my family together I always feel so short - which is quite an achievement when you realise Im 5ft 10 !
This picture was taken at Carolines party and shows just how well I look (and slightly tipsy!) at the moment.
I dont normally interact with other blogs on here, mainly because mine is about all things 'kidney cancer', but Im going to make an exception this time
2 bloggers, Yasmin and Lyn, have been kind enough to nominate me for a 'Marie Antoinette' award - which is for 'Real blogs for Real people' Im constantly amazed that anyone actually wants to read my witterings let alone give me an award ! Thank you both of you, Im really touched and when Ive had a hard think I shall pass it on.
Today, with Catherine, I am driving up to Stoke to attend another NICE question and answer session and board meeting. Im going primarily to support another patient, Kay Hopkins, in her fight to secure funding from her PCT (Stoke) for Sutent. Kay has had a dreadful battle with this particular PCT - they have even denied her the right of appeal.
Some good news on the horizon this morning - the Government have announced a new deal with pharmacutical companies which will reduce the NHS drug bill by over 400 million pounds a year. It will also reduce the cost of new and expensive cancer drugs. This, combined with the new advice NICE are to impliment in Janurary in regard to end of life drugs, SURELY will mean the end of the post code lottery for kidney cancer patients?
I shall ask the NICE board that very question