Monday, 27 July 2009

It's back


I spent last night in a world of pain. Nothing worked. No amount of Oramorph. Every single joint in my body was aching right down to my ankles, fingers and even my jaw. My thighs are agony too.
I managed to struggle downstairs this morning, I've got the district nurse and physio's coming today, but all I really want to do is go back to bed and lie there feeling sorry for myself.
I shall have to call Dr P. later this morning and let him know whats happened - that I've had to stop taking Sutent again as that is obviously what is causing this problem, I had improved so much whilst I wasn't taking it.
I'm going to start taking the MST I was prescribed tonight - I didn't want to take it before in case it masked any new symptoms or pains. Also because it seems like a step down the path I really don't want to go down yet....just yet. But this constant pain is starting to get me down.
So what now? Is this the beginning of the end? Or is there something else that will help me?
For the first time ever I'm starting to feel despondent - which I hate. Its probably due to the pain I'm in, lack of sleep, and being so frustrated at being stuck in the house.

11 comments:

Jackie said...

Hi Jane

I hope the mst kicks in quickly and eases the pain, nothing worse than pain. Once you're thinking straight you can plan your strategy again to fight this horrible disease.
Hoping all improves.
love Jackie.

LYN said...

SO SORRY TO HEAR THIS THIS MORNING...
WISHING YOU ALL THE BEST JANE...

Alexei said...

I'm so sorry that you're in such pain. I do hope you get relief very soon. x

Ally Lifewithally said...

I do hope that pain eases soon ~ Ally x

tinkerbell said...

Jane get to your Dr who is in charge asap am certain he will come up with something to hold fire so many prayers and thoughts for you, you have inspired so many folk, just rest and wait on what your consultant has to say,you stay so much in thought and prayer

Sybil said...

dear dear Jane, we are all praying that whatever lies ahead you will be able to cope in your own wonderful way. By now the nurse etc will have been and I hope been able to make you more comfortable. Also I am sure Dr. P will be able to come up with some helpful ideas.
Much Love and many Hugs xxx
Sybilxx

Funnyface said...

Hello Jane, sorry to hear your in so much pain - is this a time to bring a smile to your face by saying that 'chocolate buttons' are good for you when your feeling poorly?.....ok thought not ;o)
I am thinking of you and sending you 'get better' vibes,
Big Luv, Jaynee X

ADB said...

I'm very sorry the pain is back, Jane. It can sure drag your spirits down. Keep us posted, we're with you if only in spirit.

Daria said...

Absolutely you are feeling down because of those reasons and because cancer sucks.

I wish you some relief soon.

Hua said...

Hello Jane,

I am so sorry that you are in pain. I hope the pain goes away soon...

I'm Hua, the director of Wellsphere's HealthBlogger Network, a network of over 2,000 of the best health writers on the web (including doctors, nurses, healthy living professionals, and expert patients). I think your blog would be a great addition to our cancer Network to connect and share your knowledge with other bloggers who are in the similar situations. I'd like to invite you to learn more about it and apply to join at http://www.wellsphere.com/health-blogger. Once approved by our Chief Medical Officer, your posts will be republished on Wellsphere where they will be available to over 5 million monthly visitors who come to the site looking for health information and support. There’s no cost and no extra work for you! The HealthBlogger page (http://www.wellsphere.com/health-blogger) provides details about participation, but if you have any questions please feel free to email me at hua@wellsphere.com.

Best,
Hua

Sunil said...

I am really glade to see you again.

SUNIL

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