I spent last night in a world of pain. Nothing worked. No amount of Oramorph. Every single joint in my body was aching right down to my ankles, fingers and even my jaw. My thighs are agony too.
I managed to struggle downstairs this morning, I've got the district nurse and physio's coming today, but all I really want to do is go back to bed and lie there feeling sorry for myself.
I shall have to call Dr P. later this morning and let him know whats happened - that I've had to stop taking Sutent again as that is obviously what is causing this problem, I had improved so much whilst I wasn't taking it.
I'm going to start taking the MST I was prescribed tonight - I didn't want to take it before in case it masked any new symptoms or pains. Also because it seems like a step down the path I really don't want to go down yet....just yet. But this constant pain is starting to get me down.
So what now? Is this the beginning of the end? Or is there something else that will help me?
For the first time ever I'm starting to feel despondent - which I hate. Its probably due to the pain I'm in, lack of sleep, and being so frustrated at being stuck in the house.