Last night I started taking Sutent at my normal dose again. Pretty apprehensively I must admit.
I saw Dr Kaur again yesterday morning, Dr. P's registrar. Apparently Pfizer (who make Sutent) have never heard of such a severe reaction and question whether it is Sutent that has caused it. And of course there is only one way to be sure - to start taking it again and see what happens. I should know within the next 48 hours. Apart from my left knee, which is still very painful and a bit swollen, the rest of my joints just ache, the awful pain has gone. And I really don't want it to come back !
So far so good - I don't feel any worse this morning.
It feels like I've been off Sutent for ages but in fact it's only 10 days so it should still be fighting my cancer. I've been checking my tumours regularly for any sign of them growing and they don't appear to be. And I still feel well. So I'm keeping all my fingers, and toes, crossed that the pain doesn't return and I can stay on it.
If it doesn't return then the question will be what on earth caused the problem in my joints? But I'm not worrying about that now - I'm just hoping and praying that I can continue to take Sutent and that it continues to do the job it has been doing - keeping my cancer well and truly under control.