On Monday 13th July the appeal against NICE's decision to refuse funding for Sutent (2nd line) Nexavar, Torisel and Avastin will be held in London. The James Whale Fund have asked if I, as a 2nd line Sutent patient, will speak there.
Of course I will be there - wild horses wouldn't stop me.
The success of having Sutent approved earlier this year as a 1st line treatment is only, and can only, be the beginning. The idea of having a 'one size fits all' treatment is ridiculous - especially with all the new drugs becoming available now. We need alternatives and sequential treatments.
So, nice as its been to be travelling around Europe, I'm looking forward to coming home tomorrow and going to London.
Because this is whats really important. This is what it's all about.
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1 comment:
That is great. I am so proud of you and all you are doing for all the patients yet to need these important medications...You are such a wonderful role model. You will put the case so well.Remember to get plenty rest when you come home..
much Love Sybil xx
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