Saturday, 3 October 2009

Notes from the fog...

I'm still here. Somewhere here. In the middle of writing a couple of entries which I was waiting for some info to complete.

In the meantime Sutent has done its worst again and every joint in my body is on fire again. I cant walk. Hands and feet and legs are swollen. Started radio therapy which will carry on next week. The pain was unbearable last night.

Martin rang MacMillan this morning - stop Sutent and take as much Oromorph as I need. Which is a lot at the moment. Pain is easier but I feel totally spaced out now. Lips are numb.

Anything else I write will be garbled nonsense so I wont.

Im still here but I feel as if Im holding on by my fingertips right now.

10 comments:

pam said...

Oh Jane. I am so sorry to hear this. I hope you can get back on an even keel asap. Try and get as much rest as possible until things settle down for you. Keeping you, as ever, close to me. Sending big cuddles and a kiss from me to you. Love Pam. xx

Rose said...

Hello You, Hang in there Jane - we are all with you - why does everything sound like a cliche. I wish I was closer to give you a hug. This for a smile; I had a stand up "discussion" with Andy Burnham at the Labour Party Conference, followed by a personal invite to a meeting - we are going to do this Jane - we will make a difference. luv as ever Rose W

ADB said...

Hang in there, Jane. We're with you all the way. The Oramorph is zonking you out, so I hope your pain will ease further and STAY eased. Post when you can.

Jackie said...

Stay stubborn, rest and get your strength back now! tomorrows another day.

Jackie x

tinkerbell said...

Jane just trust and believe in this new treatment, it will make a difference i know. You are in so many peoples thoughts and prayers, you have touched so many lives. stay quiet and rest ,bless you

Andrew Petcher said...

Hi Jane, really sorry to read this entry. I am thinking posive thoughts for you as I know so many others are as well.

Sybil said...

Dearest Jane, I have just got back from Scotland and first thing I do is look up to see if there is news of you..I am so osrry that you are in such a a bad way but praying that soon things will calm down and you will be back with us all again. Till then let us all carry you along in our thoughts and prayers.
God Bless.Much Love Sybil xx

Colin D said...

Thinking specially of you as well, you have a lot of my thoughts with you and I will keep viigil as best I can, sandy my wife too:-) look forward to better updates when it settles a bit. Xx

oldbat_7 said...

Jane, So sorry that you having such a bad time just now but with your spirit and all our good wishes YOU WILL get better v.soon. I have not commented before but I have been following your progress since Dec 07 when I was diagnosed with Advanced metastic RCC and feeling so shocked - reading your blog has given me strength and fortitude-I am under Prof Tim Eisen at Cambridge and between you and him, oh and Sutent, I have resolved to keep fighting - I hope if nothing else my thoughts and prayers help you to get strong asap. With much love Jean T xx

LippyNSkippy said...

I am playing catch up Jane, as I have been away and so busy over the past Summer. So sorry you are having it so tough again, but as they say, when the going gets tough, the tough get going, and your a tough old bird, lol. Best wishes x