.......You wait for ages then 3 come along together.
I was still celebrating the news about my Sutent application this morning when I had a call from Christies. From the man himself, Prof H.
In a nut shell my tumour is 'the best it gets' as far as responding to HDIL2 is concerned. And with my good health and relative youth (koff) the chances of my responding and getting that elusive cure is about 50% according to Prof H. (Im not even thinking about that now - it sounds too good to be true doesnt it?)
And he wants me to start next week. Now Im not often lost for words but I sure was then - I muttered something about going to Brazil on 18th Dec and he said it should be fine - I will have 3 weeks to recover.
So Im off to Manchester to start treatment on Sunday - and Im terrified !! Maybe terrified isnt the right word, very apprehensive though. Very very apprehensive. IL2 is so toxic and has such unpleasant side effects. And being in ITU for 8 days wont be much fun either. I think Ive just got to surrender myself to it, have faith in the doctors and nursing team up there, and focus on Xmas on Cococabana.
Basically Im very very lucky - Ive got the best chance that IL2 will work - and if it doesnt I have Sutent lined up as a 2nd line treatment.
How things change.
The outlook was so bleak a few weeks ago - it just goes to show you should never give up on yourself - because you can be sure your doctors wont. And in Dr P and Prof H I know I have two of the very best.
So next week I need loads of positive thoughts please winging their way up to Manchester.
11 comments:
Every day you'll be in my prayers.
thats excellent! 50% is a damn site better than 20, ive got my fingers crossed for you!
keep focusing on the positive, it seems to work...
and make the most of that holiday :oD
Good luck with it, Sprite - and fingers crossed you'll be in Brazil for Christmas :)
That's wonderful, Jane. You deserved to hit some jackpot or another; and to squeeze in both the clinical optimum of undergoing the treatment straightaway AND the holistic optimum of getting your trip to Brazil because you'll have enough time to recover is surely it!
Now, just wishing you strength to to come to terms quickly with the side effects of this treatment.
I guess you'll be off the boards for a bit and you'll be sorely missed (yes, even by me, even if it will give my blood pressure a chance to recover) and routed for by many (emphatically and including me).
But that is truly heartening and encouraging news, Jane.
Go for it Jane... and take with you my love and prayers then you must start getting ready to go to Brazil ..love Jan xx
OMG OMG 50%!!!!! I am SO happy for you, I'll be thinking about you Jane xxx
So pleased to hear this wonderful news. I know it is all frightening but you have us with you holding your hand! You go girl and sooner it starts, the sooner you'll start feeling better. Hugs, Tells x
I have just found your blog via Terri and I must say you are being very brave. Good luck with this treatment...I do hope it works out well for you. Love Conniexx
I come to you via Terry..I shall be back to read and catch up...
Lyn
Came over via terri, keeping you in my thoughts take care.
luv bella xx
Having a good doctor can make all the difference. I hail from Terri's journal, and wanted to wish you well. Take care, and may your treatment be 100%~
Rebecca Anne
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