Tuesday afternoon and Dr P called. He had the results of my CT scan and wanted to see me on Thursday (today) after his clinic. So I guess its not good news then?
For the first time ever we didnt have to wait. Dr P called us straight into his consulting room. And I was right, it wasnt good news.
The scan shows that not only do I have the lesions I was aware of, on my scalp, face and two in my armpit, but I also have lesions on my lung, liver, lymph nodes and right hip. Not very big ones, apart from the one in my armpit, but none the less they are there.
It didnt really come as a surprise to either Martin or I. The way the lump in my armpit has grown over a few days was a good indicator.
Dr P explained we couldnt really wait any longer. Even a matter of a few weeks whilst I have the operation on my face and scalp was too long.
It was time for me to start taking Sutent.
Today.
He explained how it worked, the side effects and the drugs I could take to counter them, and then wrote the prescription. Just like that. I will have 2 cycles (6 weeks each) and then be scanned again to see if its working.
One months supply, in a small brown bottle, costs £3,600.
Thats £128.50 each small orangey capsule.
But to me they are priceless......
11 comments:
Oh You are in my prayers honey,
I will pray that the Sutent works and works FAST for you.
God Bless You!
Love,
Michelle
I pray these tablets are succesful ,God bless you ...love Jan xx
I hate life sometimes. I get so flamin angry when I think of you suffering like this. It's so god damned unfair and I am gutted. Keep fighting Jane. If there Is anything I can do, please mail me. I feel so useless. Sending loads of love and big hugs your way. Love Pam xx
http://journals.aol.co.uk/pamal3/almost-40/
I was sad to see that the scan showed up these other lesions but happy that the sutent has been prescribed and that you can start it straightaway to kill the little buggers. They are worth their weight in gold and I hope they do everything they should do for you. Everything and I mean everything is being crossed here in the hope that the results will be good when you have your next scan. Hugs, Tells x
Fingers crossed that the Stutent works it's magic, and in six wees you'll see an improvement, keep fighting Jane send good thoughts best wishes everything I can thin of wishing you well.
Take care
Yasmin
xx
I am keeping my fingers crossed that the Sutent has the intended effect, Jane. Keep us posted.
I am sooooooo praying that the sutent works for you.I am relieved that you have been given them because some people dont.Heres a hug. . .god bless you and all your family.
Praying they work and work WELL!
You are in my thoughts!
Angel
Christ Jane can you ever talk - or type !
Keep up the good work - this Sutent will undoubtedly help
All the best
J x
Keeping you in my thoughts and prayers....
I hope and pray the Sutent works wonders
for you...keep the Faith....never give up hope!
Big Hugs!
Terri
hi jane hope the sutent works love,really do. keep positive, you are in my thoughts always. whenever i'm having a bad day i read your journal because you are giving hope and inspiration to so many people. as for your last posting,about martin. yes you are lucky you have him. but i think he would say he is lucky to have you. god bless hun.take care love mort xxxxx
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