Ive resisted writing this because to be honest Im scared of tempting providence.
But, as this is a comprehensive account of my illness - and it is 'mine', everyone is different, I have to really.
Something very strange is happening. Last Friday, all of a sudden, I felt incredibly well. Just like flicking a switch. I felt, well 'normal'. No aches, no pains no 'grotty under the weather' feeling.
Then on Saturday that wonderful monthly experience we women have returned. An event in itself because I had been told their absence was due to my being so ill.
At the same time I noticed my 'horn' was shrinking - at first I thought I was imagining it or it was wishful thinking, but its the size of a pea now - hardly noticable.
Anyway, I mentioned it to a couple of friends who have a lot more experience than I do in KC and they both mentioned the 'R' word - Remission. Apparently even though it is a very rare occurance there are well documented accounts of spontaneous remission from advanced KC. Sometimes only temporary, occasionally complete.
Im trying not to think about it - but I still feel really well.
I havnt heard the final results from Manchester yet and Im due to see Dr P next Tues so it will be interesting to hear his take on this. I think I need another CT. I really dont want to start any treatment until I know exactly whats going on.
I dont make things easy for myself do I ?
Ps...I havnt bought the pyjamas yet
Catherine and Grace