* Written by Jane at St Mary's.. typed and posted by Martin.
What a difference 24hrs can make. Its almost unbelievable really. I'm sure I'm still in shock, I know Martin is.
As I've said before on my blog, I was getting quite a lot of pain in my legs. But I was still managing to potter around on my frame. In fact I was making cakes on Thursday ! The pain in my back, which spread like a tight band around my middle was no worse and being controlled quite well by Ibuprofen. By Sunday my legs were much more painful and I felt quite unsteady when walking so I was quite happy to spend Sunday afternoon and evening with Martin having a blood infusion in the QE Hospital. That for once went well, 3 units in no problem. At 2am we got home and I walked into the house.
Monday morning I woke in agony and... well you know the story from there.
So now I'm back at St Mary's where they are trying to get my pain under control, which isn't easy. My back especially is very painful. I've been catherterized to avoid any accidents as my bladder control is going.
I was offered treatment, radiotherapy or an operation but neither would be curative and would involve a lot more pain and being messed around. I'm not sure my body could take it. So I'm having my pain control sorted and then I'm going home... to die. Its the right decision.
Everyone has been fantastic. Martin, the kids, Carol all the nurses and Doctors. I can't praise them highly enough. 'Team Jane' at its very best.
As I said, I think I'm in shock, but when I feel a bit more settled I will write again.
PS. My hair is still falling out.